This post is inspired by Rosamund Lupton's novel, Afterwards. As a member of www.fromlefttowrite.com, I received a free copy. Lupton weaves a skillful story of a parent's love and criminal mystery in a medical setting. There was no question about the memory this novel provoked for me.
After the
conference dinner, John and I walked back to the Edison Hotel via Times Square . Neither of us had been in New York for a while and it was great fun to
just walk among the crowd on a Saturday night. The Naked Cowboy in his tiny
tighty-whiteys strummed away and we stopped to buy a t-shirt for Mark. I have
no idea what that t-shirt said or whatever became of it.
When
we walked into our hotel room the phone was ringing. Strange, I thought. Everyone
calls us on cell phones these days. My niece’s voice sounded anxious from the
start. “Bren, Rebecca has been trying to get hold of you all evening. Call her
immediately. Mark has had some sort of accident.”
I
didn’t panic right away. I’m a glass-half-full person who thinks every problem has
a solution. “Don’t worry. I’ll call Rebecca right now.”
Rebecca’s
voice sounded twice as anxious. She was driving with a friend from Huntsville where she and Mark were in school at Sam Houston State University
to a hospital in Houston .
A helicopter ambulance overhead was taking Mark.
“They wouldn’t let
me ride in the helicopter with him because I’m not related to him! We don’t
know anything except he fell off the back of an ATV and hit his head. I was
right behind him on another ATV and I thought he was joking when he got up. You
know how he can be. Then he got very angry, almost violent and we knew
something was wrong. The emergency vehicles came and they decided he needed to
be flown to Houston .”
After exhausting
all questions and answers I could come up with, Rebecca said through her tears,
“I’m so sorry, Bren. I hope he’s going to be okay.”
“Don’t worry,
Beck. I’ll get on the phone with the hospital now and stay in touch until they
know something.”
Mark and I in 1996. |
The next few hours
stretched forth as the eternal nightmare no parent ever wants to experience. I
finally reached the neurologist who had already done surgery on Mark. He said
Mark’s brain was swelling and they did surgery immediately to relieve pressure.
He would give me no further prediction of how Mark was or would be and said he
would be in touch as they knew more.
Scared but still
telling myself, Mark would be fine, I decided to call an old friend who was a
neurosurgeon in Lexington .
When I got him on the phone and described the situation, he said, “Get a flight
and get to Texas
as fast as you can. Yes, I would have agreed to the surgery to relieve
pressure.”
I made the call
thinking he would give me reassurance, now my panic soared. John began working
on his cell phone to get me a flight and a taxi to the airport while I returned
calls to Rebecca and family to update them. I shook with fear and chills as I
dialed each number. John wrapped me in blankets with one hand as he held his
phone with the other.
The taxi drive in
the middle of the night through strange parts of New York City would have scared me on other
nights. Now I had far greater fears. The driver deposited me safely at the
airport. I took a sleeping pill on the plane to force myself to get some rest on
the flight. The realization had set in that I would need all the strength I
could muster.
I arrived at the Houston airport about the same time as Rebecca’s mother
coming in from Lexington .
A friend of Mark’s from Sam Houston State
picked us both up and delivered us to Memorial Hermann
Hospital . I didn’t have a
choice of hospitals and would not have known how to choose, but I learned later
that Memorial Hermann is one of the nation’s best and the place where
Congresswoman Gabrielle Giffords will rehabilitate in the coming years. No
parent wants or deserves to spend eight days by their child’s side and
ultimately lose him but the staff at this hospital made the experience as
bearable as they were able.
We scrubbed up to
enter the ICU. Only two or three of us could go in at a time. Being very
familiar with ICU, I walked in knowing what to expect. And yet. This time my
dear Mark was lying there with tubes coming out of every orifice of his body,
his head wrapped in bandages and multiple machines attached to him. I swallowed
back the hot spit and willed myself not to vomit. I resisted the urge to climb
into the bed with him and use every mode of comfort I knew so well from twenty-five
years of parenting him.
Others arrived
hour by hour. Sims flew in from Oregon , Leah
from Philly, college friends drove over from Hunstville, his best friend
Patrick Wallace from Kentucky , an elementary school
friend and my step-grandson who both lived near Houston . My sisters Ashley and Margaret,
Rebecca’s sister Hunter Quinn. And, of course, my dear husband.
John had flown
back to Lexington , performed necessary duties
with work and house and got to Houston
as soon as he could. We had just married in January, this was April. From the
moment the phone call came in New
York until this day, John has been my tower of
strength. Who thinks they’re signing up for death and grief and catastrophic change
in their wife three months after they say, “I do?”
So a “crowd of
witnesses” had gathered in Houston .
By Monday, the neurosurgeon gathered everyone present around a big conference
table outside of ICU. The surreal atmosphere hung heavy around us. The people around
that table loved Mark unquestioningly. But as the doctor asked and then
listened to each person weigh in about Mark’s life and death, I fought the urge
to scream, “No! No! Nobody gets to decide about Mark’s quality of life and
pulling some plug except ME! I gave him birth! He is bone of my bone, flesh of
my flesh! Stop it!”
Some shred of
humanity or pastoral identity choked those words back. I knew the doctor was
allowing everyone to have their say for multiple reasons—I suppose most
compassionately to aid in the grief that was ahead of each one of us. Still, I
wanted to cling to my baby boy with every scrap of maternal instinct in my
being—primal ferocity.
The beeps and
blips of the machines attached to Mark became familiar to us. His heart pumped
on—young, healthy. His brain activity declined. By Wednesday, my intuition knew
the boy I gave birth to was gone. Mark was so identified with his intellect. He
once told me the curse of being smart was that “no matter what I become, I
cannot exceed anyone’s expectations. If I’m president, my elementary school
teachers will say, ‘I’m not surprised. I knew Mark would be something great.’”
All that potential gone—forever.
Still, there was
my son’s body—a big, beautiful, healthy body. We could not layer waste upon
waste by burying his healthy organs with him. I wanted every usable piece of
his body redeemed, reused, giving life in someone else’s body. Thus began days
with hospital ethicists, doctors, chaplains and social workers. In order to
donate Mark’s organs, he had to be brought out of the induced coma to verify
brain death. I was scared. What would that mean? Would he feel anything? Would
he know anything? My gut stayed tense for days as we each took turns standing
by his side, talking with him, touching him, reminding him of stories and place
and people we had shared. I couldn’t help but wonder if bringing him out of the
induced coma would reveal changes. Could he possibly surprise the doctors? Was
there an ounce of hope? So many questions, such medical answers but this was
not their next patient, this was my Mark!
Thursday, Friday
and Saturday, we continued to take our turns standing by Mark’s bed saying our
good-byes—long, surreal, mind-numbing, gut-wrenching good-byes. We stared at
the brain monitor—numbers that determined when they could declare the end of my
baby’s life. Numbers! Leah and I were the only two in the unit at one point and
we both used that moment to sing to Mark the songs we each sang to him as an
infant and toddler. Each person’s grief and loss seemed to bury me under
another layer. How can anybody, even me, go on with the weight of this grief?
John’s
resourcefulness never takes a vacation. He got the idea and cautiously
presented it to me that we might want to save some of Mark’s sperm.
“You never know
what the future will present, Bren. Will Sims need to use that sperm? Will
Rebecca one day want to have Mark’s baby? You never know.”
The
cruel twist is that John knew the pain of multiple miscarriages from his
previous marriage and I was too numb to have ever thought of this step. The
hospital officially said, “No, we do not perform that service.” John was
tenacious. He found a urology intern who was willing to harvest the sperm; John
found a sperm bank listed in a free local paper and the potential for future
grandbabies toddled off to the bank. In 2006, after the birth of Sims’ son,
Tristan, and Rebecca’s marriage to another, we made the decision to discard the
sperm. I have never regretted that we saved that piece of Mark for four years.
Even
the cremation plans were complicated. The medical examiner asked John, “Do you
mind if your loved one is cremated by an African-American crematory?”
“Of
course not,” John responded.
“Well,
then, it will be a couple of thousand dollars cheaper.”
Would
customer service in a white-owned funeral home have asked if we minded if our
son was cremated by white people? Another hidden injustice in our society.
Sunday morning arrived
and John and I were in a car with some folks who were taking us to church. Who
were those people? What church were we going to? How did this come about? I
suppose I knew then, but my memory fails me as I try to reconstruct. The eight
days had taken a toll and I began to move robotically through the days. As we
drove through the streets of Houston ,
my cell phone rang. The hospital. “Mark’s brain activity has declined, please
come now.”
Saying that last
good-bye with Mark’s heart still beating haunts me. The number by which experts
make such calls about life and death mean nothing to a mother walking away from
her son’s beating heart. As we walked out of ICU for the last time, Sims and I
turned to each other and grabbed hold. The agony on Sims’ face etched itself
into my brain. Mark, the younger brother, had become the older brother in
recent years. Now Sims would live the rest of his life without those phone
calls, without the UK
basketball trash talk to each other, without sharing wives, children and
Christmases to come. The grieving began a new stage.
We
returned to Lexington
and started plans for Mark’s service. I’m doing the tasks. I’m walking, talking
and sometimes sleeping, but feel strangely numb and removed.
Then my son
arrived in a box one day. Just like Amazon or Overstock.com, a package came in
the mail. I signed for it; accepted it into my hands and stood there unknowing.
What is the next step when I’m standing there holding my son in a box?
Bren, what courage you have. Thank you for sharing this intimate look at what must have been the worst time in your life. My heart goes out to you.
ReplyDeleteYes, Jennifer, it was the worst week of my life. Fortunately, I have other rich relationships in my life and joy comes in the morning.
DeleteBrenda, I can not even begin to fathom those eight days. Thank you for sharing such a rough time in your life and so beautifully written. As I read it, all I wanted to do was give you a big hug.
ReplyDeleteKim, I hope the day will come when we meet in person and I can receive that big hug!
DeleteThank you for sharing your story so publicly. I have never experienced a loss like you have and hope I never have to. I'm a registered organ donor. You gave the gift of life to many, thank you.
ReplyDeleteI love people who are organ donors!! Thank you!
DeleteBren! Oh how my heart goes out to you. How brave you were to donate your sons organs, I don't know that I could be that selfless. Having worked in a funeral home for many years I know how cold cremation can sometimes be. I remember seeing families come in to the funeral home and you just hand them a box, sometimes burial seems so much better, at least you can witness a burial. I'm sorry for your loss Bren.
ReplyDeleteAlicia, my take on cremation vs burial is: it doesn't matter what size the box is--big casket or small cremains.
DeleteThank you for sharing this very personal piece of your life. I can't imagine the pain you have been through.
ReplyDeleteThanks for stopping by, Char. I firmly believe that sharing my personal stories has the potential to help others who might be struggling with similar issues.
DeleteThis must have been a hard book for you to read, to bring up such a deep and painful time in your life, that most of us, thankfully, haven't had to face - but, you never know. You describe the experience so well - having worked in ICU's myself, I can picture the scene clearly. You have an amazing courage and heart. And you demonstrate to us all that even out of the deepest pain and grief, positives can emerge. You really are a glass-half full kind of person!
ReplyDeleteMorethanfoursides, thank you for your comments and encouragement. I hope you will read my memoir which will be out in the coming year. Bottom line is this--we can make the best of what life dishes out or wallow in misery. Life has dishes out more than my share of misery and I have chosen to make the best of it. Thanks for stopping by!
ReplyDeleteThank you for sharing such a tremendously difficult time in your life, my heart goes out to you!
ReplyDeleteThanks, Ashley, for stopping by and sharing life with me.
ReplyDeleteOh Brenda, I had no idea. I am beyond sorry for your loss, and words have no meaning. I cannot imagine your pain or what you went through, but it is something no parent should ever have to. I'm so sorry.
ReplyDeleteThanks, Michelle, for your compassionate words. It truly is something no parent should ever have to endure.
Delete